Rabbiya Abdullah

Rabbiya Abdullah

A visual artist, she is currently doing her M.A from the National College of Arts and is the president of Sooch Welfare Organization which educates the underprivileged youth of Pakistan and is currently working with the Global Genes Project. She tweets as @rabbiyaabdullah (twitter.com/rabbiyaabdullah)

Stop criticising the Ice Bucket Challenge!

My advice, to those criticising the Ice Bucket Challenge for being a waste of water, is stop! Stop criticising long enough to understand the rare disease community and their struggles. The kind of awareness ALS (Amyotrophic Lateral Sclerosis), has gotten over the past few weeks is the kind of well-deserved attention, I as someone who saw those closest to me suffer with a disease nobody knew off, could diagnose or had even heard off, wish and hope one day all rare diseases receive. People from all over the world have taken part in the campaign that has spread like wild fire. Celebrities ...

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#WearThatYouCare: Put on those blue denims and support Rare Disease Day today!

My mother passed away exactly seven years ago. She had Huntington’s chorea which she fought for 15 years and it eventually took over her ability to talk, walk, speak and breathe. Huntington’s disease is a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline. The disorder affects the brain and eventually damages mental and motor function and control. The word ‘chorea’ is a Greek word meaning dance since quick movements of the feet or hands are comparable to dancing. Disorders such as these are genetic which means that the patient’s offsprings have a 50% chance of inheriting them. For children of ...

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